Why I am fighting for 13%

I've been asked, multiple times in the last few weeks, why we are going to take Caity back to Boston for this kidney surgery to save a measly 13% of kidney. After all, you can live with just one kidney.

13% may seem like nothing to most people. But to us, it is worth saving. It means our daughter can play sports if she so chooses.

It means that if we are ever in a car accident or other medical emergency, we don't have to worry about her being completely without kidneys. It means we don't have to worry about high blood pressure or other complications from one overworked kidney.


That 13% means everything to me. The least of which is that my baby could someday lead a normal life. A life without daily antibiotics, multiple pills, and catheterization multiple times a day.

13% is worth it. It's worth taking her across the country. It is worth the $1500 in plane tickets, the lodging costs, food, subway and any other expenses this trip brings. It is worth it because SHE is worth it. She deserves this. She deserves so much more than this.